EDS / HSD
Ehlers Danlos Syndromes & Hypermobility Spectrum Disorders
In Philadelphia, Trenton, and surrounding cities
A person who is hypermobile is sometimes referred to as being double-jointed or extremely flexible. Hypermobility can be symptomatic or asymptomatic, so whether you have EDS or HSD it is important to work with a therapist who can help you determine how your hypermobility is contributing to your symptoms of pain or fatigue. Our therapists work with you to create an individualized program to better support your hypermobile body.
What is Ehlers Danlos Syndromes (EDS)?
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.
What is Hypermobility spectrum disorders (HSD)?
Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.
What is joint hypermobility?
This means that a person’s joints have a greater range of motion than is expected or usual. Some people have joint hypermobility that does not cause them pain or other issues. However, some people with joint hypermobility also have joint instability. Joint instability occurs when the bones of a joint aren’t held in place securely. This can lead to joint subluxations, dislocations, sprains, and other injuries. Joint instability can cause both acute and chronic pain and interfere with daily life.
How can we help?
Having loose joints leads to a lot of wear and tear on the joint surfaces, leading to pain even when the joints haven't necessarily moved or shifted out of place. Patients with EDS / HSD should more heavily rely on their active subsystem, the musculature. We’ll target these muscles with a low resistance and a high number of repetitions to increase endurance. Additionally, patients will be educated on activity modification, safe positioning, and how to train the muscles that aide with these tasks. This will redirect some of the forces being put through the joints and increase the stability of the unstable joint.